When facing a live-threatening illness, or being a caretaker for some who is facing such an illness, a first step should always be to find information on the problem. Most the associations which deal with life-threatening illnesses have websites with valuable resources. Many also have local offices that can be of help.
There are also many comprehensive medical and health sites on the Internet which may prove helpful. Both sources are listed below.
LOCAL CONTACTS [top]
Alzheimer's Association -
American Cancer Society -
American Diabetes Association -
American Heart Association
American Lung Association of Western Missouri -
American Stroke Association -
Arthritis Foundation -
Association for the Blind -
Breast Cancer Foundation of the Ozarks -
Community Alliance for Compassionate Care
Community Hospices of America,
Cox Senior Health Center -
Epilepsy Foundation - 1-
Muscular Dystrophy Association
National Multiple Sclerosis Society, Ozark Branch
Ozarks Lupus Chapter
Parkinson's Group of the Ozarks
Service Coordinator for Adult Traumatic
Springfield Association for the Blind
NATIONAL CONTACTS [top]
Adult Congenital Heart Association (www.achaheart.org) - Information about the organization for adults with congenital heart defects, their families and medical professionals. List of support groups plus email to find one in your area.
ALS March of Faces (march-of-faces.org) - Dedicated to raising public awareness of ALS and advocating on issues that will benefit PALS (People with ALS) and their families, through self-empowerment resources.
National Alzheimer's Association (www.alz.org) - Provides information about Alzheimer's disease, resources, research advances, publications, and events; includes contact information and links to local AA chapters all over the United States.
Alzheimers Disease Research Center (mayoresearch.mayo.edu/mayo/research/alzheimers_center/) - The Mayo Alzheimer's Disease Research Center is one of 29 Alzheimer's disease research centers across the country designated and funded by the National Institute on Aging of the National Institutes of Health.
American Cancer Association (www.cancer.org) - Provides information about cancer and the campaign to stamp it out.
American Diabetes Association (www.diabetes.org) - Offers the latest information on diabetes and living with the disease. The mission of the American Diabetes Association is to prevent and cure diabetes and to improve the lives of all people affected by diabetes.
American Heart Association (www.americanheart.org) - Information and education about heart and stroke disease.
American Liver Foundation (www.liverfoundation.org) - Provides information on liver diseases, as well as advocacy for education, treatment and research funding.
American Stroke Association (www.strokeassociation.org) - American Heart Association division established in 1998 to reduce the impact of stroke. The division's Web-based offerings include prevention and recovery fact sheets for consumers and treatment guidelines for professionals
National Multiple Sclerosis Society (www.nationalmssociety.org)- The latest information about MS diagnosis, treatments, resources for living with MS, society-funded research efforts, library and educational programs.
United Cerebral Palsy (www.ucp.org) - General information about Cerebral Palsy and how it affects people.
SUPPORT GROUPS [top]
Adult Children of Aging Parents
Adult Diabetes Support Group
ALS Support Group
Alzheimer's Association, Southwest Missouri
Alzheimer's Support Group
Arthritis Support Group
Before and After or
Brain Cancer Support Group
Breast Cancer Network
Cardiac Discussion Group
Caring Hearts Support Group
Cancer Care Teleconferences
Circle of Friends
Compassionate Friends, Greater Ozarks Chapter
Cox Health Systems
Cox Diabetes Center
Family and Friends of People With MS
Make Today Count
Missouri Brain Injury Association,
Multiple Sclerosis Support Groups
New Hope Share Group or
Panic and Anxiety Disorder Support Group
People With MS
Prostate Cancer Support Group
SIDS Resources, Inc.
Southwest Missouri Brain Injury Association
Southwest Missouri Regional Arthritis Center
St. John's Mid-America Cancer Center
Suicide Survivors Support Group
United Ostomy Association, or
GOVERNMENT RESOURCES [top]
Missouri Division of Senior Services
Social Security Administration
Southwest Missouri Office on Aging
National Institutes of Health (NIH) (www.nih.gov) - One of the world's foremost medical research centers, the Federal focal point for health research and the steward of biomedical and behavioral research for the Nation
National Institute of Mental Health (NIMH) (www.nimh.nih.gov) - Provides information for the public and practitioners in the field of mental health.
National Heart, Lung, and Blood Institute (NHLBI) (www.nhlbi.nih.gov) - Information for professionals and the general public about heart and vascular diseases, lung diseases, blood diseases and resources, and sleep disorders.
National Institute of Diabetes & Digestive & Kidney Diseases (NIDDK) (www.niddk.nih.gov) - Conducts and supports research on kidney, urologic, hematologic, digestive, metabolic and endocrine diseases, as well as on diabetes and nutrition.
National Institute of Neurological Disorders and Stroke (NINDS) (www.ninds.nih.gov) - Research and clinical information on disorders of the brain and nervous system.
National Institute on Aging - NIA (www.nia.nih.gov) - Promotes healthy aging by conducting and supporting biomedical, social, and behavioral research and public education. Topics addressed include: menopause, exercise, alzheimers, and cardiovascular diseases.
MEDICAL SITES ON THE WEB [top]
HealthWeb (www.healthweb.org) - Links to evaluated information resources selected by librarians and information professionals at academic medical centers in the US Midwest. Selection emphasizes quality information aimed at assisting health care professionals as well as consumers in meeting their health information needs.
InteliHealth (www.intelihealth.com) - Aetna InteliHealth's mission is to empower people with trusted solutions for healthier lives. It accomplishs this by providing credible information from the most trusted sources, including Harvard Medical School and University of Pennsylvania School of Dental Medicine.
MEDLINEplus: Interactive Health Tutorials (www.nlm.nih.gov/medlineplus/) - Online tutorials are interactive health education resources from the Patient Education Institute. Using animated graphics each tutorial explains a procedure or condition in easy-to-read language. You can also listen to the tutorial.
WebMD (www.webmd.com) - Comprehensive health resources for consumers, physicians, nurses, and educators. Includes news, chat forums, health quizzes and consumer product updates.
Medscape Health (www.medscape.com) - Medscape Health provides free health information on hundreds of topics. Produced by Medscape, it is a companion site to Medscape.com, the most widely used Web site for doctors and healthcare professionals.
MedTerms.com (www.medterms.com) - Easy to understand explanation of medical terms.
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To know that we know what we know, and that we do not know what we do not know, that is true knowledge.
- Henry David Thoreau
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